“Brutally Honest Bev”
Get used to this, as this is what you get when you
visit this section!
I say this now before you continue, if anyone
thinks that MY opinions will offend them, then do NOT read things that
I write and place in this area of this web site as they express MY opinion
“ADHESION Support Groups”
Victims of ARD will not secure health
by being limited to ONE group’s point of view, by limiting themselves to
learn of only ONE surgeon’s ability or skill!
To deny “respect and freedom” to any victim of ARD who feels the need
to do what is necessary as they seek resolutions to their suffering of
ARD, will hampered any success they might have in that quest if they are
impacted by to many rules and controls in any given
If any group or person “supports” you without respecting your needs,
taking away your freedom to be or denying you access to information, your
securing about as much “support” as you did before "support" groups existed,
as what they offer you in "support,” is nothing!
It is a tragedy in the word of ARD when you, the victim of ARD, suffer
anxiety and stress when seeking “support” from your peers in the world
There is no “greater” tragedy in the world of ARD then when we are
suppressed and disrespected by our own peers in the world of ARD!
" I Pledge Allegiance"
If we feel that we have to "pledge an allegiance" to be part of a specific
ARD Support group,
and fear ramifications by "the founder or friends” within that group,
if we are found to be committing these acts of "treason:"
Collaborating with the "enemy" in another support group,
Crossing into "territory" of another support groups web
Crossing into "territory" of more then ONE other support
groups web site,
Inadvertently "spilling" the beans about information we
another support groups web site,
Having "friends" in another support group
Securing assistance from any other support group though we cannot
secure that same help in "OUR" support group.
If we are "caught" POSTING on another web site
And the worst of all violations:
If we post on "OUR" groups web site, information
we picked up off another
support groups web site,
(That is in strict violation of rule # 872645780218
and if that rule doesn't exist, it will!)
What is wrong with this picture?
Other then the above list, we should be able to enjoy our time surfing
for material in any group we wish to visit, if not, we need to think about
why we would allow ourselves to be controlled
in this way.
WE who suffer ARD seek respect, recognition and support, as heaven
knows we are denied that many times over in our lives, but, when we choose
to "allow ourselves" to be disrespected, and from fellow ARD sufferers,
maybe we are best served by going to counseling and staying away from a
"support" group that does those things, as how upbeat can a group like
that be for us?
Isn't it enough to have to live with the sufferings of ARD every
minute of everyday without?
adding insult to injury by "choosing" to allow it into our lives
from within the world of support groups?
Victims of ARD “ARE”
backbone of support group sand web site.
Without them visiting the site, there
would be no web site or support group!
Bev will name names here...
If your name is within the content
of my words here, you have either
earned my praise or you are to
be “pitied and even ashamed” for your part in
this crusade to make this world
a better place for
ALL victims of ARD!
When we, the victims of ARD, discovered the truth surrounding
why many of us suffer as we do today...many of us lost trust in the medical
community, and as that door closed on us another door was opening, but
little did we know then that door would give us the opportunity, the "gift,"
if I may, of discovering each other!
To me this was the most pivotal turning point
in the history of the world of
Victims of ARD!
With a new found sense of relief and strength we turned to one
another seeking justice for the wrongs done to us, wanting changes
that would pave the way for ALL victims of ARD to find peace within our
pain! We sought ways to gain respect by those within the medical
community who all but shunned us before, and by those within our own circle
of family and friends, who misunderstood our suffering through no fault
of their own. Through each other we also sought to secure effective medical
interventions so that our wounds could be healed. We had hopes of changing
things done to us so we might spare others from the same fate we suffered
at the hands of the medical/surgical community!
We sought support so that we could find strength to get
through another day, hour or minute. We sought ways that would hopefully
stop us from being victimized again and again, as most of us had already
experienced in our days when we were alone! We sought ways that would
hopefully stop others from becoming victims of ARD! We seek solace,
support from one another looking to secure any semblance of healing
and peace we might be able to bring into our days, already so impacted
with suffering and pain.
We sought education and awareness hoping to help ourselves recover
parts of our lives that were interrupted by this affliction and we hoped
together, we would be able spread the word to all corners of the world
by promoting education
and awareness of
"Adhesion Related Disorder!"
In the very beginning of public awareness of ARD, there was that
first time many of us knew that we were not alone in our struggles with
adhesions, for most, that was before there was even a name for our affliction,
and before there were hundreds of informational and promotional web sites
on adhesions appearing out of no where from a world of silence that surrounded
what appeared to be an "unknown" affliction! Appear they did, and
more are yet to come! But no matter their agenda, they ALL spread the word
about OUR affliction, and that cannot be seen as a wrong thing!
ALL of the awareness about adhesions that we see today was
the results of one man and one society
"The International Adhesion Society!"
“Yes, ALL OF IT!” Dr. David
Wiseman was compelled to reach out to those suffering from adhesions when
they started to reach out to him. He is not a victim of this affliction,
but a scientist who was among the very few who were working diligently
on our behalf because they knew of our suffering first hand being surgeons
and scientists, in an attempt to find effective resolutions that might
benefit us. Dr. Wiseman’s heart was in the right place back then as it
Among, but not limited to, are some within the medical community who
stepped up to the task of bringing this affliction to the public along
with Dr. Wiseman and I applaud them:
Dr. Mike Diamond, Dr. Lena Holmdahl, Dr. Harry
Reich, Dr. Glen Bradley, Dr.Harold Ellis,
Dr. Mathias Korell, Dr. Donald Menzies, Dr. Togas
(I owe my life to Dr. Wiseman, Dr. Glen Bradley
and Dr. Harry Reich in that order as that was my path to getting as well
as I am today, and pain free for five years now!)
To follow came other organizations willing to take on the cause
of ARD, and there was plenty of room for them too, in fact, we need
more of them, and from all over the world and all with their own special
agendas! Within two years of the formation of the "International
Adhesion Society," we saw the formation of the "
UK Adhesion Society,""ARDchat" "The World Adhesion Foundation," "Adhesionrelateddisorder.com"
all founded by victims of ARD!
"Applause, applause, standing ovations here
for starting these support groups!!"
Their claims to be for the victims of ARD
by the victims of ARD were a sure indication that we might very
well be on the way to realizing the goals set forth in the beginning. Quite
an accomplishment to say the least!
These groups offered support to the ARD sufferer in many
ways, from inter-personal communication and assistance, to education and
awareness, to campaigns promoting education and awareness of ARD to the
far corners of the world, chat lines and message boards that allow for
interaction and support of the ARD sufferer, as well as family and friends.
Some support groups lean to the medical issues more
then others, some lean to only advocacy and "pal" type stuff, recipes and
prayers, another might not. Some support groups will not "name names,"
and some will, some do not fear controversial issues, yet another might
fear controversial issues, thus have so many "rules" that you need an attorney
to help you decide if you can or cannot post, or if you should post or
what you can or cannot do without checking the group "rules" each time
you enter there! It is just a support group, not the Congress!
Some groups have so control on their sites then our bowels have
over poop when we are constipated by pain meds! In a support group like
this, you must tread like you’re walking on egg shells for fear you will
light a fuse and be kicked off it!
So much for offering "support" for the
victims who those groups are they’re for!
To me, it makes no difference what group or web sites offers
what, as it would be an injustice to the victims of ARD if all supporting
web sites and groups were the same, as to be different means different
people can have different needs met, make choices and compare services
offered and learn from a variety of perspective. Being "different" is a
good thing! Some of these groups have gained the support of government
agencies and in that doors have been opened for victims of ARD to be able
to apply for benefits that were otherwise unavailable to them or so difficult
to apply for that they simply gave up or didn't even attempt it!
If a specific web site offends you,
guess what? You don't HAVE to be in there!
All support group sites offer a great education base for anyone
who is looking to be educated about the affliction called
"Adhesion Related Disorder."
Today, we are seeing web sites regarding post
surgical adhesions from all kinds of "special
interest" groups ranging from surgeons to tealeaf readers, and
all vying to be noticed by the victims of ARD! They offer their services
in what has become a "shopping network" for ARD sufferers seeking to secure
the highest quality of medical intervention they can secure, and today,
you can be assured that the ARD sufferer is an educated person who will
not be securing any information from these "special
interest" groups without checking them out with a fine tooth
comb. As it is in this that we will stop ourselves from becoming victims
again! These groups, be they medical/surgical, therapeutic and homeopathic,
are all trying to appeal to the patients who might be interested in their
services, thus we see elaborate web sites filled with information on ARD,
and filled with promises that at times, appear to good to be true! We see
informational sites about ARD from adhesion barrier companies, from companies
who sell surgical equipment to the surgeons who treat adhesions, we see
just about everything that relates to adhesions in one way or the other,
but we also know that these "hard sells" are for profit and for profit
from the victims of ARD!
It is because of all of those types of web sites and promotions
that the victims of ARD must be as educated as we can be about our
affliction, we must be "Our Own best Dr.'s" and we must be able
to turn to each other and the ARD organizations operated by our peers and
through which we can connect with those peers for help with any issues
that confront us in our quest for health.
"Knowledge gives you strength. Knowledge
gives you courage. Without courage there can be no progress. Without
progress there is no solution."
But again, I say that at least they ALL spread the word about
affliction, and that cannot be seen as a wrong thing!
Words shared by another ARD sufferer and myself
a number of years ago, and words that are a must yet today for all victims
of ARD if they are to disseminate high quality intervention from poor and
potentially harmful intervention!
Today we see others within the medical community stepping up
to the plate and, regardless of what anyone else thinks about them, they
are among those who offer some form of intervention for the victims of
ARD that was not available or recognized before they stepped up to the
plate, for this I applaud
We, the victims of ARD expect to see a competitiveness between groups
that are seeking to capitalize off the suffering of others, but not all
of that is a bad thing, as some of those groups do have much to offer those
who are suffering symptoms of ARD, and thank-goodness for that as without
them, we have no hope, and all the support from our peers will not bring
relief in our physical symptoms. Recipes, chats, prayers and good will
wishes or sympathy shared will not resolve my pain or constipation or need
for medicine or medical intervention, it helps, be assured of that, while
on is waiting to secure an effective intervention, but we will not secure
health through support alone! Victims of ARD will
not secure health by being limited to ONE group’s point of view, by limiting
themselves to learn of only ONE surgeon’s ability or skill!
Dr. Tom Lyons, Dr. CY Liu, Dr. Bruno Van Herendael,
and Dr. Barry Richter
Honor and justice will live in all who are
Honest to their quest of helping their fellow
One man scorned and covered with scars, with his
last ounce of courage, continued to reach for his unreachable star, will